Privacy Policy

The Clear Cell Sarcoma Foundation (“CCSF,” “we,” “us,” or “our”) is committed to protecting your privacy. This Privacy Policy explains how we collect, use, disclose, and safeguard your information when you visit our website, interact with our content, make a donation, or participate in our programs and services.

By using our website, you consent to the practices described in this Privacy Policy.

1. Information We Collect

A. Personal Information You Provide to Us

We may collect personal information that you voluntarily provide, including:

Contact information: name, email address, phone number, mailing address
Donation information: donation amounts, payment details (processed securely through third-party payment processors—CCSF does not store full payment information)
Communication preferences
Stories, testimonials, or submissions shared through forms or email
Registration details for events, webinars, fundraisers, or volunteer opportunities

B. Automatically Collected Information

When you visit our website, we may automatically collect:

IP address
Browser type
Device information
Pages visited and time spent
Referring website or link
Cookies and tracking technologies (see Section 6)

This information helps us improve website performance and user experience.

2. How We Use Your Information

We may use the information we collect to:

Provide, operate, and maintain our website and services
Process donations and send donation confirmations or tax receipts
Respond to inquiries and provide support
Send newsletters, educational resources, updates, and fundraising announcements
Improve our programs, communications, and outreach efforts
Manage volunteer participation and event registrations
Conduct research and analysis to better understand community needs
Ensure website security and prevent fraud

You may opt out of marketing communications at any time.

3. How We Share Your Information

We do not sell, rent, or trade your personal information.

We may share information with:

Trusted third-party service providers who assist with website hosting, analytics, email communications, donation processing, or other operational needs
Law enforcement or legal authorities when required by law
Partners or research collaborators, only when you explicitly opt in or provide consent

All third parties are required to maintain confidentiality and use information only for authorized purposes.

4. Protecting Your Information

We implement administrative, technical, and physical security measures to safeguard your personal information, including encryption of donation transactions and secure data storage. However, no data transmission over the internet can be guaranteed to be 100% secure.

5. Your Choices and Rights

Depending on your location, you may have the right to:

Access, update, or correct your personal information
Request deletion of your information
Opt out of marketing communications
Request copies of the data we hold
Withdraw consent where applicable

To exercise these rights, contact us at: media@clearcellsarcoma.org

6. Cookies and Tracking Technologies

We may use cookies, pixels, and similar technologies to:

Improve website functionality
Analyze website usage
Personalize content
Measure the effectiveness of campaigns

You may disable cookies through your browser settings, but certain website features may not function properly.

7. Links to Third-Party Websites

Our website may contain links to external websites, social media platforms, or fundraising platforms such as Givebutter. We are not responsible for the privacy practices of these third parties and encourage you to review their policies.

8. Children’s Privacy

Our website is not intended for children under 13, and we do not knowingly collect information from children. If we learn we have collected such information, we will take appropriate steps to delete it.

9. Donor Privacy

We respect and protect donor privacy. CCSF will not:

Sell or trade donor information
Share donor information without consent
Disclose donor information publicly unless the donor opts in (e.g., for honor/memorial listings)

Donor information is used only for processing donations, issuing receipts, and communicating relevant updates.

10. Changes to This Policy

We may update this Privacy Policy periodically. Any changes will be posted on this page with a revised “Last Updated” date. Continued use of our website after policy updates constitutes acceptance of the new terms.