Clear cell sarcoma foundation


With the onset of the pandemic, our fundraising which was based on in-person activities came to a screeching halt. Previous to that, we were running up against the wall with the effort involved and the amount of money we were raising versus the number of projects we were able to fund. We have a clear vision of the next steps necessary to make a difference in CCS, and are very motivated to accomplish these goals.


Tissue Collection and Repurposed Drug Testing

The most pressing issue is identification of a beneficial treatment for Clear Cell Sarcoma.


Patient Registry

An organized system that uses observational study methods to collect uniform data to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure.


Single Cell Sequence of Clear Cell Sarcoma

Dr. Andrea Hayes-Jordan of UNC Chapel Hill has offered to join our cause to research for a cure for Clear Cell Sarcoma (CCS).


Support Our Trial

A small pharmaceutical company in New Jersey is diligently working with the FDA on our behalf to start a first-ever Clear Cell Sarcoma combination drug trial.