Clear Cell Sarcoma Foundation

Warrior Stories

We all have a story, each and every one of us. Our story matters. Our stories impact the lives and decisions of others. Our stories are real, beautiful, broken, true, and brave. Our stories are ours and no one else's. What is your Clear Cell Sarcoma story?

Clear Cell Sarcoma Foundation Warriors

Here is just a glimpse of Clear Cell Sarcoma stories. We hope that you can relate with some of these stories, that you may be touched, encouraged, and understand that you are not alone.

Clear Cell Sarcoma Foundation is ready to answer any questions you may have.

If you need immediate assistance, please call our general line and leave a detailed voicemail.

General: (843)-501-2055
Scientific: (843)-693-3346

General: info@clearcellsarcoma.org
Scientific: kelley@clearcellsarcoma.org

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For Patients

We are a family who cares about the well being of each other. You are not alone.

Clinical Trials

Clinical Trials are the primary way that researchers find out if a new treatment is safe and effective in people.

Donate Your Tissue

The single most valuable thing we can do as patients is donate our tissue to research.

Newly Diagnosed?

It’s important when you’ve been diagnosed with something rare to get a second opinion, sometimes a third

Patient Registry

We have officially initiated our patient registry in January, 2020 through the National Organization for Rare Disorders.

Warrior Stories

All of us have a story. Read the stories of our Clear Cell Sarcoma warriors and share your own with the world.

Definitions You Should Know

it's important that we understand these definitions so that we can make the best decisions for ourselves and our family

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