If you have recently been diagnosed with Clear Cell Sarcoma, your tissue donation will make a significant impact in advancing research and finding effective treatments for this rare and aggressive cancer. By donating your tissue, you provide researchers with invaluable samples that can be studied to unravel the complexities of CCS leading to a deeper understanding of its underlying mechanisms and potentially paving the way for targeted therapies and improved patient outcomes.
Clear Cell Sarcoma Foundation is an organization dedicated to providing a place for CCS patients and caregivers to come together for sharing and support, while taking an integral step toward better treatments and outcomes. We are a family who cares about the well being of each other.
You are not alone.
The Clear Cell Sarcoma Foundation is committed to helping bring together physicians knowledgeable about Clear Cell Sarcoma. We want to partner with physicians to offer support and connection with other physicians as well as CCS patients. Since CCS is ultra-rare, it is difficult to access up-to-date information quickly. CCS patients and caregivers have participated in FDA listening sessions, Focus Groups and Industry webinars. CCS is our main focus so please reach out to us, we are here for you.
We take each donation, no matter the size, very seriously. Every dollar donated to CCSF goes directly towards initiatives that help us solve two problems - finding more patients around the world with CCSF, and taking actionable steps to find a treatment and cure.
Our Mission is to make Clear Cell Sarcoma survivable
through education and scientific research.
Hear what Dr. Kevin B. Jones and other medical professionals have to say about clear cell sarcoma and why it is important for clear cell sarcoma patients to connect with each other through The Clear Cell Sarcoma Foundation (Sara's Cure).
Find ways to get involved
The Clear Cell Sarcoma Foundation is the only CCS research based patient advocacy organization in the world. It's important that we come together to find a treatment and cure for this disease. If we don't, no one will.Donate
The cure for Clear Cell Sarcoma is out there. We need to be the ones to go out and find it.
“The Clear Cell Sarcoma Foundation is the only organization looking at Clear Cell Sarcoma specifically which gives me so much hope for a cure”
”An effort like CCSF is really important to try to connect people. to connect them with resources that not only will be available for them but to connect them as a resource to be available to the people who are trying to study this disease”
“The Clear Cell Sarcoma Foundation gives me hope for a cure because it is an organization where the sole focus is Clear Cell Sarcoma. The organization is lead by people who’s lives have been personally impacted by this horrible cancer and know the urgency in finding a treatment and cure”.