The Clear cell sarcoma foundation

Newly Diagnosed?

Now that you have this new diagnosis, you are likely to begin researching on your own. What you will find are difficult-to-read publications filled with words that you have never needed to know before. We have included some of those words with definitions below for you. This is certainly not a comprehensive list, but this will get you started. Please remember that it takes time to absorb all of this new information, but you will get it. Don’t hesitate to contact us or others for support. It is good to have a loved one prepared to advocate with you. You are not alone.
Definitions To Know

Dr. Andrea Hayes-Jordan, MD

"It's important when you've been diagnosed with something rare to get a second opinion, sometimes a third"

Sara's Cure connects people.

"An effort like Sara's Cure is really important to try and connect people"